Step by step
Practical guides
Checklists and plain instructions for the moments when you just need to know what to do next.
Guide 1 — You've just been diagnosed: the first two weeks
- Get the exact name of your diagnosis in writing — cancer type, subtype, and stage if known. Ask for copies of your pathology report; you're entitled to them.
- Bring a second set of ears to appointments. A friend or family member who takes notes will catch things you miss. It's also okay to record visits — just ask first.
- Consider a second opinion. It's routine, oncologists expect it, and insurance usually covers it. Major cancers centers (NCI-designated ones especially) see rare situations most often.
- You usually have more time than it feels like. For most cancers, taking one to two weeks to get organized and informed does not change your outcome — confirm your timeline with your doctor, then use that time.
- Tell people on your terms. There's no right way. Some people tell everyone; others tell a small circle and appoint one "information officer" to update the rest.
Guide 2 — Questions to ask your oncologist
Print this, or save it to your phone, and don't be shy about working down the list:
- What exactly is my diagnosis, and what stage is it?
- Has my tumor been tested for biomarkers or mutations? Should it be?
- What are all of my treatment options — and what do you recommend, and why?
- What is the goal of this treatment: cure, control, or comfort?
- What side effects should I expect, and which ones mean I should call you?
- How will treatment affect my daily life — work, family, fertility?
- Is there a clinical trial that fits my situation?
- Who do I call with questions after hours?
- Can I meet with a social worker, dietitian, or financial navigator?
- If you were me — or this were your family member — what would you do?
Guide 3 — Preparing for chemotherapy
- Before day one: see a dentist (treat any infections first), stock easy bland foods, arrange a ride for your first session, and fill your anti-nausea prescriptions.
- What to bring: layers (infusion rooms run cold), water bottle, snacks, entertainment, and lip balm. Sessions can run several hours.
- The golden rule: take anti-nausea medicine on the schedule you're given, even if you feel fine. Preventing nausea is far easier than stopping it.
- Know your emergency number and threshold: fever of 100.4°F (38°C) or higher means call immediately, any hour.
- Track how you feel in a simple notebook or app — patterns across cycles help your team fine-tune your supportive medicines.
Guide 4 — Eating well during treatment
- Small and often beats large meals — aim for something every two to three hours rather than three big plates.
- Prioritize protein (eggs, yogurt, beans, fish, smoothies with protein powder) to maintain strength and help your body repair.
- For taste changes: cold or room-temperature foods often taste better; plastic utensils help if food tastes metallic; tart flavors (lemon, ginger) can cut through.
- Stay hydrated — treatment is much harder on a dehydrated body. Broths, ice pops, and diluted juice count.
- Ask for the oncology dietitian. Most cancer centers have one, the visit is often free, and personalized advice beats any list.
- Check before supplements. Some vitamins and herbs interfere with chemotherapy and radiation — always clear them with your team first.
Guide 5 — Navigating insurance & paperwork
- Create one folder (physical or digital) for every bill, explanation of benefits, and letter. Future-you will be grateful.
- Learn three numbers: your deductible, your out-of-pocket maximum, and whether your treatment center is in-network.
- Prior authorization delays are common — your oncology office fights these daily; call them first when something stalls.
- Denied? Appeal. A large share of insurance appeals succeed. Your care team can supply a letter of medical necessity, and Triage Cancer and the Patient Advocate Foundation offer free help.
- Never pay a large bill immediately. Ask for an itemized bill, check it against your insurance statement, and ask the hospital about financial assistance — most have programs they don't advertise.
Want these as printables? Check the blog, where we expand each guide with downloadable checklists and reader questions.